Friday, 14 October 2016

Freestyle Libre CASE Giveaway! (UK Only)

Recently the lovely folk at Cara Collection contacted me with the offer of three beautiful cases for a Freestyle Libre Case Giveaway (UK only)!

Cara Collection make absolutely beautiful bracelets and accessories, but better still they come from a place of knowing about type 1 and wanting to make a difference using their skills and reach.  

I have THREE of their beautiful cases for a flash (geddit) giveaway on your favourite all-things-diabetes blog! 

Check out the full video for details, but if you want to get your hands on one of these gorgeous cases ABSOLUTELY FREE, all you need to do is:

1.  Enter why you just LOVE your Libre in the comments and leave a clue as to who you are (no personal details please, there are weirdos out there!)

2.  Send me an email at so I can link up your  comment with who you are in case you are a winner

3.  If you are one of three lucky winners  - go ahead and enjoy your Libre in style!

Competition closes 16th October, 2016 at 6pm!

And don't forget to check out Cara's gorgeous webshop for stylish and gorgeous things you will love! They post to the UK and deliveries take just 5 days so enjoy the things you buy even quicker xxx

Tuesday, 20 September 2016

Off-label Dexcom use: Diabetes Gore and A cautionary tale (of a lump named Trump)

It was just like any other sensor removal - something which had become second nature over my 3-year Dexcom use.  Frustratingly on only day 6 of wear, the edges of the sensor tape had lifted off so much that when I rolled the dog-eared tape edges back and peered underneath, I could see the puncture site where the sensor pierced my skin.  Time to take it off.
I was a little annoyed because I hate removing a functioning sensor early, but since my daughter arrived I haven't had the time to continuously check that my CGM tape is still taught on the skin, and quite often I now lose sensors before they expire naturally anyway.  I have to pick my diabetes battles now that I am juggling a whole other life - one which has yet to learn about CGM sensors and why mummy needs to take five minutes to fiddle with Rock-tape and Skin Tac rather than read about gluttonous caterpillars and prowling lions.
As I pulled away the sensor pad and transmitter from my skin, the small puncture wound seemed nothing out of the ordinary: visible, but tiny.  I wiped the skin with a sterile wipe and carried on my day expecting the usual 24-48 hour heal-up time for the puncture wound to disappear.  But 48 hours later the small puncture wound was now a lump.  Barely possible to detect and seemingly innocuous, but somehow foreign feeling on my ordinarily flat outer thigh.
'What do you think?', I asked the GP on my first visit, because I had been warned that the thyroid medication I am on can react badly to an infection so I always needed to check anything suspicious.  "Let's wait and see, but I don't think it's infected." he purported. 
So I waited.
By the third visit. with my skin colour changing and my experience of the lump - now growing in size and thickening in texture - was starting to sour.  The experiment in waiting was now an hourly pre-occupation on my mind.  I was sporting what I was convinced was an example of part of a sensor being stuck in my leg. But my claims fell on deaf ears.
Trump - an unsightly,
strangely-coloured object with strange
ideas of world domination
"I'm sure it's nothing.  If there was something in there it would be hard or would work its way out." I heard, over and over.

I was told everything from "It's a bruise!" to "It looks like an abscess!", but no-one believed there could be anything left inside my leg, despite my protestations about just how tiny the foil-like sensors are. The thing made my leg look like the elephant man, but there was nothing inside, or so they told me.

By my fourth, fifth or sixth visit (I'd lost count by then) my leg, sporting a lump named Trump (big, ugly, discoloured beast unwelcome in its own land) was the stuff of my (actual) nightmares.  I would dream of legs being amputated or infections so bad I could no longer control them. My mood was already low and Trump was making life a darn-sight worse.
By the time I noticed something protruding from my leg, which when pulled at released a whole bunch of disgusting, and two small shards of what appeared to be foil-like sensor, I had seen two GPs over five visits, one diabetes consultant, the A&E department at QA Hospital and a walk-in clinic. I had been placed on antibiotics by the A&E department and was feeling like my leg would explode.

The GP finally got interested around the time that the wound opened, and has since then seen me every two weeks.  But this happened in May.  It is now September.  That's four months of my life spent worrying about how much worse this leg could get.  Four months of my life barely using Dexcom because I was still dealing with the damage of Trump the Rogue.  By the time it broke, and the antibiotics were flowing, my leg looked and felt like something from a diabetes Public Heath Announcement, and I felt just a little broken. 

Diabetes, don't do it kids...
It's been four months and the Trumpy Lump, complete with colouring of yuk and texture of gross, is yet to go.  I'm not sure if it ever will.  The whole experience has been less than enjoyable.
But here's the thing, I still love my Dex.  Even now, with the lasting effects of one gone bad, I love it.  Granted, I enjoy my Dex-free times now, but with a holiday just a few days away my thoughts are already on how many I'll need and how useful it is to have.  And how I miss it, when I have some paraphernalia free days.  Dexcom is an amazing tool, but its not infallible.  It can go wrong.
I emailed some of the pictures through to Dexcom because I decided they should see, and hear about, what I would be posting.  They replied and after a lengthy conversation with Dr Vitaliy Gisin, who called immediately on receiving my email, I got given this advice:
Dexcom advice
Firstly - if you think there is anything lodged under your skin, insist upon an X-ray.  Because of the angle that the sensor goes in, when some gets stuck in your leg, it has trouble working its way out.  In many people the body can just deal with or expel the foreign body, but as I have proven with my slightly broken, semi-functioning body (my words, not Dexcom's!) sometimes this can prove hard.  But an X-Ray would have shown the metal up bright enough to be sure, and could have been done some months ago.
Secondly - off-label is not OK.  Although I make no bones about my use of sensors for far longer than the 7-day label use, this has always been my choice, and I wouldn't advocate anyone else do it.  And although this sensor was on day 6, I used the outter part of my thigh.  This, Dr Gisin confirmed, is also off-label, and he recommended I return to using my abdomen.  My problem with this is that cannulas are painful to use in other areas and thanks to pregnancy, what little usable skin I have left is reserved for my cannulas.  This makes sensor placement tricky. But rules are rules.
Thirdly - and lastly, if any part of a sensor snaps off in or out of your body when removing - keep that sucker in a piece of tissue and send it back to Dexcom.  Dr Gisin was rather disappointed to have discovered I didn't keep the minute shards of sensor I pulled from my leg, as we will never know how or why they failed so badly on day 6 of wear.
So there you have it, my slightly-disgusting and depressing reason for posting pictures which shatter your image of my gorgeous pins (chortle).
Keep Dex-ing people, but do it carefully.

Sunday, 31 July 2016

Depression, Complications and Diabetes: Seeing the signs

It's hard to pinpoint when or where it began but it's been creeping in for some time, and the feeling is all too familiar.  There is so much in my life to be grateful for; a wonderful family, a beautiful, healthy daughter, a good job and cosy home. I go on holidays and have had a rare, precious opportunity to spend more than a year at home with my kiddo before returning to work, something people all over the world would give their left arm for.   But when the early days of depression begin, it is rarely because of dwelling on what you lack. It is a complicated issue made murkier by the swings and roundabouts of blood sugars and diabetes complications.

I spent days Googling 'Post Natal Depression', confused that I felt none of the typical symptoms, but well aware that something wasn't right.  I felt deeply connected with my child, and although I relished  (good God, did I RELISH) the moments I had away from her for a break, I couldn't wait to hold her again and make absurdly disgusting fart noises just to see her smile. I was also in the 'easiest' phase of parenting so far, when she sleeps through the night and is predictable in routine in the day.  I was finally drinking hot coffee again, the house was tidy and I could indulge in whatever evening TV I wanted, with little chance of interruption.  But despite being unable to connect my feelings with being a few months postpartum, my mood was low: correction, is low.

To the outside world I still smiled and joked.  I gushed about maternity leave and posted happy pictures on Facebook, but inside my head was whirring full of emotions fuelled by blood sugar mayhem and fears about the future.

The earliest place I could pinpoint as the beginning was visiting the Opthamologist's office, being told that they believed my Maculopathy may be developing, and further tests were needed.  I guess they have told people this a thousand times, but for me it was a first.  Casually talking about my sight like it was a sandwich I might miss out on eating, we discussed treatment and risks like they were no big deal.  Blindness and amputation have always been my greatest diabetes fears, and hearing the words out loud, looking over to my daughter sleeping peacefully in her pushchair, my mind was spinning thinking how much I would stand to miss out on; how much I wouldn't see.

Each morning I wake with a jump as the two - now three - trigger fingers jammed shut on hand, horribly shocking and a painful way to start the day.  The only relief being an operation.  That to follow the two carpal tunnel operations I have already had and the double tendinitis which needed shots and still remains in one hand.  Pain is a powerful beast.

Add to that infected Dexcom site which may, or may not, still have a piece of sensor stuck inside  my leg since May which was viewed by five different medical professionals over five separate visits, before someone had to take my hand and tell me it would be OK, as my eyes filled with tears of terror and defeat.  Eventually someone prescribed me antibiotics. It took a visit to the ER and a million tearful 'thank yous', before someone took my hand.

The pain in my left foot, like walking on a stone, may or may not be a diabetes nerve complication.  It's hard to tell given that nerve endings are tricky things to look at.  But it makes even the most wonderful walk a painful affair.  Pain is a powerful beast.

In recent months I have had so much to feel joyful for, but even the most joyful moments have been dulled by the constant aches and pains of the complications which everyone tells me are 'just a part of diabetes'.  The drip-drip-drip of complications, pain and medical mysteries has left me feeling just a little broken, at a time in my life when most women talk about how pregnancy and labour made them 'think they can do anything', I feel nothing but all the things I can't do.   

"There is always someone worse off than you," Is a mantra I've tried to tell myself, but in the moments I spend trying to get out of bed without bending my fingers because they will snap shut with excruciating pain, or the moments where the GP sends me on my way telling me to lose weight, without investigating any of the issues further, I find it hard to take a whole breath.

I don't know if I am depressed.  But I do know that I am a person with diabetes coming to terms with the possibility of permanent chronic pain from repeated inflammation issues. I am the mother of a baby trying to get my head around the fact that my eyes might not keep going forever.  I am the 33 year-old who has to take each step down the stairs one at a time in the morning because her foot, and swollen joints feel particularly painful today. I am 'the diabetic' gasping of thirst because her postpartum tiredness meant she slept through the 'HIGH' alarm on her Dexcom, the Dexcom she currently resents because of the sensor-might-not-be-sensor still stuck in her leg.

I am human.  And part of being human is that I am feeling ever so completely 'diabetic', right now.  As though that is the biggest part of me. Maybe the only part - the rest having been chipped away by a disease I can't escape. I am afraid.  And that's OK to say.

I don't know what the future will hold, but I know that endorphins and 'saying it out loud' can only serve to help.  Small goals at the gym, spending time outside and perhaps re-immersing myself in the community I have turned away from will help.  

For now, it's just one day at a time.

Saturday, 23 July 2016

Animas Sports Weekend 2016: Part Two

This May just gone I had a little too much going on to manage to make it to the Animas Sports Weekend.  So this October, when the new-format weekend takes place on 8th and 9th October at Loughborough University, I will be there with bells on.
The weekend has been going around five years now and continues to draw people in time and again. Those who are there for the first time build friendships that last a lifetime. Those who have been before, want to go again.
Sports Advice
Exercising with type 1, particularly for those unfamiliar with exercise or those doing exercise which pushes them to new levels, is a tricky business.  Hypos, hypers, aerobic, anaerobic, diet, muscle repair, insulin dosing: the whole shebang can baffle my brain.  I've been on a number of occasions thanks to the relationship I have had the joy of developing with Animas but every time I go, I pick up something new.  Each time the knowledge and research by people like Dr Ian Gallen (who helped Sir Steven Redgrave reach his five gold medals at the Olympics) and Dr Alistair Lumb, deepens and broadens, so even if you've been before, there is more to learn.
Peer to Peer Time
Undoubtedly one of the highlights for me in going to the weekend is the joy of mixing with other people with type 1.  Learning from them, laughing with them, synchronising hypos; every bit of it is a joy.
Very few events in the type 1 calendar give the opportunity to mix with so many people living the same condition, so this weekend is socialising gold. It literally leaves you with the warm and fuzzies and 'fills you up' for months more living with diabetes.
Ever heard of people like Roddy Riddle, the type 1 Scotsman who made the 150 mile Marathon De Sables his bitch?  Or Claire Duncan who takes on ocean swimming or coast-to-coast in one day cycles (this woman eats marathons for breakfast)?  The team of speakers that Animas puts together could inspire a nation to get on their bike and give it a go.  And best of all, they are ridiculously wonderful people to spend a weekend with.
Because, there's a bar, obviously (hic).
How to get registered
Whether you are new to exercise, struggling to manage blood sugars in your normal exercise routine or stepping up to the plate for that marathon you always wanted to do, this weekend is for you.  The exercises are adaptable for those just wanting to try them out and for those wanting a challenge.
Registration for the weekend starts on the 1st August, when the link on this page will go live.  Spaces fill quickly so don't sit on the fence - hurdle it and give it a go.
Want to know more?  Then I guess you'll just have to come and see for yourself.
See you on the 8th October!!

Monday, 11 July 2016

Be anything you want to be...

I have very mixed feelings about Theresa May. On the one hand the industry I work in has been decimated on a scale far greater than if she had driven a steam train into Piccadilly Station and set off an atom bomb. Morale is at an all-time low and the derogatory comments and smears she has made of services I treasure, such as the Police, are unforgivable. On the other hand, as a person with type 1 diabetes in a public role, she flies the flag bearing the mark of diabetes. 

I often think about the 'what's ifs' of my daughter one day developing type 1 diabetes. She shouldn't, given that she has just a 2% chance of developing it, but the chance is always there. Raising a child with type 1 can be a tricky business, and in amongst the challenges about self-management, maintaining blood sugars, issues with food and trying to manage a long-term chronic condition, come questions and identity challenges about what you can and can't 'be'. Aviation and emergency services are just two of the careers marred by limits on who can do them, and usually people with diabetes need not apply

Had you told me as a girl of just four, hands too small for the cumbersome blood glucose meters of the day, whose life had been irrevocably thrown into a veritable typhoon of diabetes, that she could one day have a job like being the Prime Minister of England, I would beamed from ear to ear.

The fact that the next would-be Prime Minister of England has type 1, is a landmark for people with the condition. People like Halle Berry, still causing merry hell by telling people that she was a type 1 who 'weaned herself off insulin' (God, give me strength) means we may finally have a 'real' face of the condition. Even if that face is one whose political decisions I have disapproved of, deeply. 

The one good thing out of the political turmoil and social unrest in our county is that one day I may have to convince my daughter than she can be anything she sets her mind to, and that can even be the Prime Minister of England.

Thursday, 7 July 2016

Dexcom: Gen 6 and beyond

DexCom has always been a market leader in Continuous Glucose Monitoring; that's just a fact. While there are some fantastic sensors out there, for example, the Enlite sensor by Medtronic and the Freestyle Libre by Abbott (not strictly CGM but as close to and for many a more preferred way of engaging with their glucose levels). But, DexCom has always been just a hair breadth ahead in terms of accuracy and length of wear of sensors.

The exciting news from camp DexCom is that they are set to increase that gap even further with longer wear, an improved inserter (leaving 'the harpoon' in days gone by) and less calibration needed. And that is just Gen 6 (we are currently stealing through Gen 5 unless you are an old-skool Animas user like myself, who still rock out to Gen 4!) 

The full list of improvements can be found below, and are a fine example of how forward-thinking at DexCom raises the bar for everyone else. 


Friday, 17 June 2016

Dario: The changing face of home glucose testing

I have a confession; for the last few months I have wanted nothing less than to engage with my diabetes.  Burnt out from having a baby and managing thyroid issues on top of diabetes, I've retreated completely to the land of head-burying.  CGM sensors have been stacking up in my paraphernalia cupboard, and my transmitter is lost somewhere in North Wales following a holiday where diabetes was ignored to an impressive extent.  As diabetes week appeared on the horizon I had nothing to say, and thought it had nothing I wanted to pay attention to. Or so I thought, until along came Dario.
I was contacted by Dario about their glucose meter and asked to review it.  I agreed, aware that diabetes week was a great deadline to have my thoughts on paper.  Little did I know that inspecting their device would lead to testing more regularly and a hugely positive SHOVE back into the land of looking after myself - slowly, but surely.
So here is the detail.
The Meter
The Dario glucose meter is a palm-sized device which turns your smart phone into a glucose meter*.  Everything needed for the test - strips, pricker and smart-phone adapter - are all contained in the stylish case, which fits comfortably in my handbag giant baby-sack.  This works alongside the Dario app which can be downloaded from your smart phone app store. You can buy the meter from Advanced Therapeutics for £14.95, or ma be able to get one via your diabetes team if they stock them.  The test strips are also NHS approved.
The App
The Dario app is ridiculously pleasing to use. Rather than the typical 3, 2, 1 countdown, the six-second test shows on the screen in a buffering-style circle, which makes it somehow less ominous than the dreaded countdown.  This might sound ridiculously tiny as a detail (I mean seriously it is), but the first time I used it I was surprised at how pleasing the on-screen detail is.  Even my husband who has no preferences whatsoever when it comes to anything diabetes, perked up and agreed how the design was aesthetically a little bit of a treat (is it totally weird, the things we 'like' about our technology?).  The App itself is self-explanatory in use and has some great features like the ability to log food (fairly standard these days) and exercise (something I missed enormously when One-Touch removed that function from their testers) and a handy counter for hypos and hypers along with the usual average glucose range.  All-in-all, a job well done.
The good
Self-contained and all-in-one, this meter does what other smart phone-compatible testers have, in my opinion, not done so well.  It is sleek and convenient, and small.
The app is very well designed and extremely easy to use.  I didn't even bother with the manual as the kit was so easy to use.
The size makes this a really good bit of kit for a mother who is already weighed down carrying god-knows-what for my bundle of joy.
The bad
As a fumbling-bumbling-mum-of-one I often forget to charge my phone.  It's just not really been a priority for the last eight months and I have, on a regular basis, found myself without any battery.  If this happens, the meter is (very obviously) useless.  This only happened to me once while I was testing the device, but it was while I was out and about with my daughter, and I was due to start driving which in the UK comes with a strict caveat that we test before driving.  Luckily I was still packing my other meter so was able to test.  My advice?  If you think this is the meter for you, carry a spare charger for the car. 
The only other negative for me was that I use Diasend regularly to share my data with my diabetes team.  I have not found a way to share my Dario data (if you know how, please drop me a line to and for me this is a really key feature and I would love to see Dario introduce this as a feature.  If they did that, along with a spare car charger would make this meter perfect.
Would I use this meter?
Absolutely, yes.  It is a space-saving well thought out device and a pleasure to use.  My new-mum clumsiness mean I may stick to my regular battery-powered meter until I can get my Megan Trainor on and be sure that I have all the right chargers in all the right places, but this is a really good device.
Drop me a line and let me know what you think if you decide to give it a go. Happy Dario-ing!
*Boring fine-print - available for iPhone: OS 6.1 or higher: iPhone 4, 4S, 5, 5S, 5C, 6, 6 Plus; iPod touch 3rd & 4th generations; iPad 2, 3 and iPad mini; iPad with Retina display Android (OS 4.1.2 or higher): Samsung Galaxy S2, S3, S4, S5; Samsung Galaxy Note 2, 3; LG/Google Nexus 5